I read a lot. I take great comfort in recognizing my family's story in other people's stories. Perhaps it is human nature to know that we are not alone. When you face the challenges of parenting a child with autism, circumventing and obeying the host of "rules" your child lays out for you, it is hard not to feel like it is impossible that anyone else could possibly understand your life. And how you live it.
And no offense, but I honestly do not think one can truly "get this" unless they are living it. It is just too much, too all-encompassing to understand unless you are in it up to your armpits.
At this particular moment in time, I am feeling very isolated. We are going through a cycle of extreme sensory issues, and thankfully I am now experienced enough to know that these issues will cycle out again, but for now, they are very, very real. And very, very limiting.
As one example, right now we are going through an extreme aversion to food smells. Extreme. It is very hard to find things to cook that will not make him feel as if his body is under attack. Try going to the grocery store with a child who can lose all sense of decorum at the slightest whiff of banana.
At times like this, my world gets very small. There are few places I can go, few things I can do. Honestly, it is a pretty lonesome scene.
I know that there are other moms out there who honestly understand the bizarre dilemnas I find myself faced with. Moms worldwide ask each other for advice on tips for facing parenting challenges, how you get your kids to bed on time, ways to sneak more vegetables into their kids, stuff like that. But I'm looking for help solving slightly less common problems, How do I get my boy to keep the sleeves of his winter coat rolled down ? How do you get your child to tell you if they've hurt themselves? How do you explain to people what your child needs without coming off all "preachy"?
You are out there, right? Other moms do have these kinds of questions...right?